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Pain. The metastasis is skull, spine, ribs, liver, lung and lymph nodes in chest and pelvis, liver, pelvis, hip. Half of my tongue is paralyzed due to c-spine involvement so talking, chewing, swallowing are difficult.
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Weill have gamma Knife radiation to brain lesions
Taxol, Carbo, Avastin (pain, nausea and vomiting, fatigue, confusion). Zofran was the BEST anti-nausea drug and I tried them all. Broken pelvic bone, NEUROPATHY (very bad so I am on an anti-seizure drug to control it). Tarceva, Alimptor…
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Friends collected a “Luxury Fund” for me to spend on anything. They wanted me to get massages and nail care but my bones were too fragile for massages, I broke my pelvic bone doing nothing at all. And the neuropathy in my hands and feet was so bad that I couldn’t stand them to be touched. I got many beautiful scarves, a wig, make-up, and took my kids to the movies. I had 3 groups bringing our family dinners |
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